At age 38, life was busy & stressful. Headaches were nearly a constant. I went to a Headache & Pain Center to see if a cause could be determined. Nothing was "found", but with a little medication, my headaches became less severe and frequent. The doctor did comment that it was unique that one of my eyes was a different color. Hmmmm - I had never heard that before and hadn't noticed it before either.
Several weeks later I had my yearly routine eye exam with an optometrist for glasses & contacts. The screening showed an elevated pressure in one eye and a distorted pupil. I was referred to an opthamologist. After the exam, she disappeared for about 10 minutes.....and came back and announced I had a rare corneal disease called ICE and that it caused glaucoma and someday I may need to have glaucoma surgery and a corneal transplant. She immediately prescribed glaucoma eye drops.
I was stunned. I remember coming home and searching the web for hours. I remember crying too as I looked at photos of eyes of patients with ICE. It was scary. It was the beginning of the journey.
How did your journey begin?
Hi I was diagnosed about 18 months ago after a lot of trips to the doctors, hospitals and specialists. I am now coming to terms with the fact that I have an odd left eye and it's got to be said that I'm very conscious of it even though my family and friends say that they didnt notice it until it was pointed out to them. I am aware that the condition could be a lot worse and will probably progress and after surfing the Internet for hours I'm still not sure what to expect so any information that you could provide or share would be much appreciated.
ReplyDeleteThanks Rachel